You may remember my jubilant post about the good news we received following my mid-way PET-CT scan. Turns out things may not be so clear cut as we were first led to believe.
Last week, the labs at the RUH took a blood sample for culturing and managed to grow the bacteria and identify it; I'm harbouring something called Roseomonas...
After four days in hospital thanks to my second bout of neutropenic sepsis (sigh) I was feeling pretty rotten. As well as my neutrophils sitting at zero when admitted, my haemoglobin levels were also low and resulted in a lovely spell of anaemia. I was weak, dizzy and even my eyesight was being affected.
UPDATE: Sadly it seems it’s not as clear cut as we thought.
In the last blog post I bemoaned the feelings of scanxiety around my first check up PET-CT scan since my chemotherapy began. Well, I'm not worried anymore. We have the results.
Tomorrow, I will have my first PET-CT scan since chemo started. It will tell my doctors whether or not my chemotherapy is working.
What if my chemo isn't working as well as it should be? What if it hasn't had any effect? What if my cancer has gotten worse?
This morning I’m attempting to learn how to give myself my daily G-CSF injections (under the careful tutorage of Dr Tracie Miles, sharps extraordinaire). As someone with a phobia of needles, even looking at the damn thing is making me wobbly! But it’s way worse for the orange...
Yesterday was quite an exciting (and very tiring!) day, because I had the pleasure of being filmed for a Macmillan advert - fancy or what?!
Just a quick one today because, as you may have seen on my social media accounts, I've been admitted to hospital with neutropenic sepsis. Ah damn - but more on that later in a heftier post. I wanted to take a moment to give a shout out to my lovely Mum. She doesn't like to... Continue Reading →
Today I broke down. I continue to sob as I write this.
Sometimes I feel like my mind is renting a small square footage of my body. It has become communal property. Some of the tenants are part of a cooperative to keep it in good condition. Some are saboteurs. But everyone has a say.
I want my body back.