Today, after 6 months of caring for me during the worst period of my life, my parents are heading back to Wales. The complexity of what I'm feeling, and the urge to look back over the last six months and see just how damn far we've come, has me itching to write again for the first time since January.
It’s official and unequivocal; cancer has left the building. No interference in the scan this time, so no doubt. I’m officially in remission from Stage 4 Hodgkins Lymphoma. This is going to take some time to process, but I am over the moon. I'm a cancer survivor!
At first it went unnoticed. Silent tendrils of smoke licking at the walls, and small flames creeping their way through each room. By the time it was caught the inferno had a firm grip and was raging uncontrollably, wreaking immeasurable damage throughout the place I called home.
Perfect flavours to combat that awful chemo mouth which chemotherapy causes. If you fancy giving it a go you can find the recipe here.
Hopefully a relatively short update today just to bring everyone up to speed and to get back into the swing of things. Hah, yeah right.
You may remember my jubilant post about the good news we received following my mid-way PET-CT scan. Turns out things may not be so clear cut as we were first led to believe.
Last week, the labs at the RUH took a blood sample for culturing and managed to grow the bacteria and identify it; I'm harbouring something called Roseomonas...
UPDATE: Sadly it seems it’s not as clear cut as we thought. In the last blog post I bemoaned the feelings of scanxiety around my first check up PET-CT scan since my chemotherapy began. Well, I'm not worried anymore. We have the results.
This morning I’m attempting to learn how to give myself my daily G-CSF injections (under the careful tutorage of Dr Tracie Miles, sharps extraordinaire). As someone with a phobia of needles, even looking at the damn thing is making me wobbly! But it’s way worse for the orange...